Meeting Commenced at 8.00 pm

Apologies: John and Rosemary Holden, Georgina Loughnan, Nick Morozoff and Alison Wright, Clare Cunningham, Louise Soames

Present: M. Apperley - Chairman
  14 embers
  Guests: Jenny Pas - Special Olympics
    Kris Gage - Special Olympics

1.The Minutes of the 2004 AGM were read and confirmed.
Moved: M. Spacavento
Seconded: D. Robertson

2. Business Arising - following the 2004 AGM a postal nomination and ballot was needed to elect the second NSW Parent Delegate to the PWSA of Australia (the national association). This was completed in May 2005 and Barry Greensmith was elected as the 2^nd Parent delegate with a term expiring at the 2005 AGM.

NSW Parent Delegate report: M. Spacavento and B. Greensmith (written) provided information n the activities of the PWSA Australia. Early stage planning for the next Australasian conference has commenced. It is hoped to engage a professional conference organiser. It is likely to be held at the Gold Coast sometime October 2007. The next telephone meeting of the PWSA Aust. is to be 10^th August 2005.

Barry Greensmith advised that he has been in contact with Pfizer regarding progress with Growth Hormone submission to the Pharmaceutical Benefits Advisory Committee (PBAC). This submission has been completed but no further action can take place until TGA approval is achieved. This approval is pending.

3. Treasurer's report was tabled and presented by J. Sackett. On the Trial Balance there is a mistake. The date next to the line "Membership Fees" should be deleted.

Matters Arising:
Question was asked whether there is a possibility of a camp in the future? Response by J. Sackett indicated that the Association may organise a "family" type of camp including parents and carers.

Question was asked whether the NSW Association still has a telephone book entry. J. Sackett advised that we will not be renewing the entry and will rely on internet access.

The Treasurer's report was accepted.
Moved: J. Gelb
Seconded: J. Lowe

4. President's report. M. Apperley presented his report.
4. Election of Office Bearers.

The retiring Office Bearers were:
President - Miles Apperley
Vice President - Maurie Spacavento
Treasurer - John Sackett
Secretary - Vacant
The following people were nominated and elected unopposed to the positions indicated for the period 2004-2005.
M. Apperley: Elected President 2005-20065 Nominated: J. Gelb Seconded: D. Robertson
J. Sackett: Elected Treasurer 2005-2006. Nominated: J. Lowe Seconded: L. Robertson

J. Lowe: Elected Secretary 2005-2006. Nominated: M. Sackett Seconded: J. Gelb

The following people were nominated for the postion of Vice President
M. Spacavento:. Nominated: M. Sackett Seconded: S. Stocks
D. Robertson: Nominated: J. Gelb Seconded: G. Gelb
The result of a ballot was
M. Spacavento: Elected Vice-President 2005-2006
5. Appointment of State Delegate to National Association
B. Greensmith's appointment as NSW State Delegate expired at the AGM. Considering a postal nomination and ballot was held 3 months prior to the AGM and only B. Greensmith was nominated, the nomination of B. Greensmith to continue in the position for a further two-year term was accepted. Seconded: J. Lowe.
Matters Arising:
It was discussed that the correct process for nominating the parent delegate was to distribute the position description and call for nominations with the notice of the AGM. It was noted that this procedure should be followed for the AGM in 2006.
- D. Robertson advised that he has a position description for the NSW delegate that he will forward to M. Apperley for distribution to B. Greensmith and M. Spacavento. The document outlines the obligation of the parent delegates to report back to the relevant state association.
- It was agreed that parent delegate feedback should be placed on the NSW association website as a way of disseminating the information to the members.
-M. Spacavento to raise the issue of state reporting at the next meeting of the PWSA Australia. Need to determine whether the feedback would be 2 or 4 times per year.

6. Other Business taken On Notice
Dr. Ellie Smith advised the meeting that she always advises parents with children that are newly diagnosed PWS to join the Association M. Apperley thanked Dr. Smith for this support.
- Meeting Closed 8.50 pm
- A presentation about Special Olympics was made by Jenny Pas and Kris Gage.