Location: John Sackett's home - 13 Lambert Rd, Bardwell Park NSW, 2207

Time: Meeting started at 8.20 pm

Present: M. Apperley - President; Maurie Spacavento - Vice-President; John Sackett - Treasurer

Items of Business and Actions Arising

1. Presidents Report

AGM was held in August. The positions of Secretary and NSW State delegate to PWS Australia remain Vacant.  No volunteers have come forward to fill the roles of Fund Raising Co-ordinator and Librarian either. Some business was taken on-notice to be handled by the incoming office bearers. The speaker, Mr. David Woolley, from D-Sport gave an informative talk.

2. Treasurers Report

2.1 Membership of ACROD - will let this membership lapse since little value is obtained for the NSW Association and it is relatively expensive.

2.2 Medical Service Directory - no known history of subscribing to this service. Looked at the website and decided not to renew subscription.

2.3 Membership of NICAN Inc - decided to update and remain on national database.

ACTION 1: MA to update details and send off.
 
2.4 Bank Accounts - M. Apperley, M. Spacavento and J. Sackett to be signatories for the Association's bank accounts. MA and MS to supply ID to Westpac for the purpose of setting up the account. J. Sackett completed forms at the meeting.

ACTION 2: MA and MS to attend Westpac Bank and supply ID.

2.5 New ATO endorsement measures for Charities - decided to complete the ATO forms and apply for GST exemption status.

ACTION 3: J. Sackett to complete the ATO forms.

3. BUSINESS CARRIED OVER FROM AGM.

3.1Election of NSW State Delegate to PWSAA for a 1 year term - At AGM it was agreed to put this election to a postal vote. It was decided at this meeting to send the nomination papers out in mid-October with a view to voting (postal and in person) concluding at the Networking meeting to be held 29 November 2004. Description of the position is to be included in the papers so that Members can get an understanding of the role. It was also decided to send out descriptions of the other positions that remain vacant as well.
ACTION 4: MA to prepare postal nomination form and send out by mid-October.

3.2 Utilisation of the Camp Fund - At the AGM Leslie Robertson had requested that the incoming office bearers consider how to apply the money in the Camp Fund for the benefit people with PWS in the same spirit in which the fund was originally set-up (since no camp was to be held).

MS reported that the Milson Island booking had no been cancelled. An alternative idea is to run a family/carers supported weekend away in which families or carers bring their people with PWS. The Camp Fund could be used to subsidise food or activities on such a weekend. Still aiming to have the "Family Weekend" in December 2004.

JS suggested Camp Quality maybe an alternative camping group that could cater for the needs of people with PWS.

ACTION 5: MS to explore opportunities with Camp Quality

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