Helpful Tools
Through the Maze - A support handbook put together by the Association for Children with a Disability in NSW
Fortitude Parents Support Group - Susi Trevena, one of our mums from the Association has been involved in setting up this vital support group for parents with a child with special needs.  For more information on where monthly meetings take place go to link above.

International PWS Organisation Newsletter
Wavelength August 2010
Wavelength July 2008

Medical Reports from International Endocrinology Meeting (ESPE) September 2008
ESPE 08 - Abstracts on PWS
ESPE 08 - Difficulties in Clinical Management

Research/Medical Updates 2009
Feb 2009 Update on Growth Hormone from PBAC

Research/Medical Updates 2008
Carnitor (L-Carnitine)
Adrenal Insufficiency in Individuals with PWS
Growth Hormone Therapy - Benefits
Growth Hormones for Adults with PWS
Growth Hormones for Infants & Toddlers
Growth Hormones - Precautions with PWS
Phenotype PWS and GH Deficiency
Osteoporosis Evaluation and Therapy in PWS
Surgical Treatment of Spinal Deformity in PWS

NSW PWS Association Meeting Minutes 2008
NSW PWS Association AGM - Aug 20 2008
NSW PWS Association Committee Meeting Mins - Jul 23 2008
NSW PWS Association Meeting Mins - Mar 26 2008

Older Documents
Garvan Institute PWS Research
Growth Hormone Submission 2006
Help Support PWS Research

The button above may be used to make a donation on-line. The payment is secured through Paypal but you can make a direct payment via credit card by ignoring the Paypal option.  Donations may be directed towards the NSW Association or you may add a note to the third page of the payment process if you would like the Association to forward part or all of your donation on to the Garvin Institute (see above NEW items for details).  Note that all Donations are Tax Deductible.