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Prader-Willi Syndrome Association of NSW helps NSW parents and professionals in the support of people with Prader-Willi Syndrome (PWS).
PWS affects an extremely small proportion of the population and is generally associated with obesity and behaviour problems.
The NSW Association is a non profit organisation that was constituted in 1980 by parents of Prader-Willi Syndrome people to provide parent and carer support and with the aid of health professionals, disseminates information about the Syndrome. The Association still provides this function as well as organising conferences and lobbying Government. A further key activity is to co-ordinate a yearly PWS camp and arrange several social functions.
This site's primary purpose is to provide information relative to the members and other interested parties about the NSW Association's activities. A wealth of generalised information about the syndrome and related articles can be found on the Directory of Related Links page.
NEW - 2nd Asia Pacific Prader-Willi Syndrome Conference March 2012
*** Latest News and Information ***
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The button above may be used to make a donation on-line. The payment is secured through Paypal but you can make a direct payment via credit card by ignoring the Paypal option. Donations may be directed towards the NSW Association or you may add a note to the third page of the payment process if you would like the Association to forward part or all of your donation on to the Garvin Institute (see above NEW items for details). Note that all Donations are Tax Deductible. |
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