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Here are links to websites that we have found to be useful. Some are specific to Prader-Willi Syndrome, some are great for researching the condition and others are sites that you will find of interest.
Links to PWS, Medical, Government and Support Sites
PWS ASSOCIATIONS WORLDWIDE
IPWSO (International Prader-Willi Syndrome Organisation): www.ipwso.org
Argentina:
www.praderwilliARG.com.ar
Denmark: www.prader-willi.dk
Canada: www.pwsacanada.com/
Chile: www.prader-willi.cl
Finland: www.kvtl.fi/pws
France: perso.orange.fr/pwillifr/
Germany: www.Prader-Willi.de
Italy: www.praderwilli.it/
Netherlands: www.praderwillisyndroom.nl/
New Zealand: www.pwsa-nz.co.nz
Spain: www.prader-willi-esp.com/
www.amspw.org
Switzerland: www.Prader-Willi.ch
United Kingdom: pwsa.co.uk/
USA:National: www.pwsausa.org
New York: www.prader-willi.org/
HOSPITAL/MEDICAL
A terrific online catalogue of wonderful Speech and Language tools. www.linguisystems.com/
Obsessive Compulsive Foundation, Inc.
www.ocfoundation.org/
GOVERNMENT BODIES
Y
Centrelink: www.centrelink.gov.au
Commonwealth Department of Health and Family Services: www.health.gov.au
SUPPORT ORGANISATIONS
Association for Children with a Disability: www.acd.org.au
Carers Association: www.carersaustralia.com.au/
GENETICS
Genetic profile of PWS:
www.geneclinics.org/profiles/pws/
Murdoch Institute: www.mcri.edu.au/default.asp
NSW Genetics Education Program: www.genetics.com.au
Diagnostic Criteria for Prader-Willi Syndrome
www.pwsausa.org/syndrome/Diagnos.htm
The Genetics of Prader-Willi Syndrome : An explanation for the rest of us
www.pwsausa.org/syndrome/Genetics_of_PWS.htm
• PWS Worldwide
• Hospital/Medical
• Government Bodies
• Support Organisations
• Genetics