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The Prader-Willi Associations around Australia are undergoing a change. We are aiming to give parents, providers, people with PWS and others better support and assistance. The Associations will be strengthened and become more energetic through a change of structure. This will coincide with the rollout of the NDIS across Australia.

In the meantime choose a contact from below that is best for you. We are here to help.

Prader-Willi Syndrome Association of Australia

Email: info@pws.org.au

  • President: James O’Brien (Vic)
  • Vice President: Elly Scheermeyer (Qld)
  • Secretary: Anne Sakaris (Tas)
  • Treasurer: TBA

Ordinary Members:

  • Kathy Ashton (NSW)
  • Assoc Prof Ellie Smith (NSW)
  • Kate de Josselin (Vic)
  • Bernadette Systa (QLD)

PWSA of Victoria (including South Australia and Tasmania)

Website: www.pws.asn.au
Email: info@pws.asn.au

PO Box 92
Kew
Victoria, 3101, Australia

Phone: 0451 797 284
Overseas callers: 61 451 797 284

PWSA of New South Wales

Website: www.pwsnsw.org.au
Email: nsw@pws.org.au

PO Box 6302
North Sydney
NSW 2060

PWSA of Queensland

Email: praderwilliassociationqld@gmail.com

PO Box 8295
Woolloongabba
QLD 4102

Western Australia
TBA

International Prader-Willi Syndrome Organisation (IPWSO) – Australian Representatives

IPWSO Professional Delegate:

Assoc Prof Ellie Smith
Email: ellies@chw.edu.au

IPWSO Parent Delegate:

James O’Brien
Email: c/o info@pws.org.au

IPWSO Carer Delegate:

TBA